In this section you will find clinical information (guidelines, protocols and toolkits) relevant to the care of Adult patients. 

The information is listed in alphabetical order.

If you have any suggestions for further documents to be added, please email: Sheena.Vernon@uhbw.nhs.uk 

(Please also see Pregnancy for information on pregnancy and contraception). 

 

CHD Standards

 

Clinical Information

ESC Guidelines on Endocarditis (updated August 2023)

ESC Guidelines on Cardiomyopathies (updated August 2023)

ESC Guidelines on Management of Adult CHD (Updated 2020)

 

Orientation to the Bristol Heart Institute

 

Dental (see also Dentistry page)

Dental Care Pathways for Adults with Congenital Heart Disease

Endocarditis BMJ Information (2023)

ESC Guidelines on Endocarditis (updated August 2023)

 

Exercise

ESC Guidelines on Sports Cardiology and Exercise in Patients with Cardiovascular Disease (Updated 2020)

 

Fetal (see also Fetal page)

Fetal cardiology handbook

 

Guidelines

SWSW CHD Network Guideline - ACHD Echo

SWSW CHD Network Guideline - Atrio Ventricular Septal Defect (Updated Nov 2022) 

SWSW CHD Network Guideline - Atrial Septal Defect (Updated Nov 2022)

SWSW CHD Network Guideline - ACHD Referral in South West (Updated Nov 2022)

SWSW CHD Network Guideline - Bicuspid Aortic Valve and Associated Aortopathy (Updated Nov 2022)

SWSW CHD Network Guideline - Coarctation (Updated Nov 2022)

SWSW CHD Network Guideline - Cyanosis (Updated Nov 2022) 

SWSW CHD Network Guideline - Ebstein (Updated Nov 2022) 

SWSW CHD Network Guideline - Fontan (Updated Nov 2022) 

SWSW CHD Network Guideline - Right Ventricular Outflow Tract Obstruction  (Updated Nov 2022) 

SWSW CHD Network Guideline - Subaortic Stenosis (Updated Nov 2022) 

SWSW CHD Network Guideline - Supra AS (Updated Nov 2022) 

SWSW CHD Network Guideline - Congenitally Corrected TGA (Updated Nov 2022) 

SWSW CHD Network Guideline - TGA ASO (Updated Nov 2022) 

SWSW CHD Network Guideline - TGA Mustard Senning (Updated Nov 2022) 

SWSW CHD Network Guideline - TGA Rastelli (Updated Nov 2022) 

SWSW CHD Network Guideline - Tetralogy Of Fallot (Updated Nov 2022) 

SWSW CHD Network Guideline - Ventricular Septal Defect (Updated Nov 2022) 

 

Heart Failure

ESC Guidelines on Heart Failure (updated August 2023)

 

Lesions

Specific Discharge Guidance at Transition for Minor Lesions (published October 2023)

AtrialSeptal Defect

Aortic Stenosis

Coarctation of the Aorta

Ebsteins Anomaly

Fallots Tetralogy

Marfans Syndrome

Patent Ductus Arteriosus

Transposition of the Great Arteries

Ventricular Septal Defect

 

Image sharing

Clinician's guide to image sharing

 

Intervention

Elective referral for complex electrophysiology and devices procedures (ACHD patients)

24/7 specialist advice for ACHD patients including pre-operative assessment for non-cardiac surgery

 

Nursing Information

CHD Heart Diagrams (external link)

CNS Clinic Continuation (UHBW)

Congenital Heart Disease Clinic Information


 

Patients - Self-Referral

Management of patients who self-refer out of hours to adult congenital heart disease services

Access to second opinion and referrals to other centres/services

 

Surgical

Pathway for cardiac surgery (ACHD patients)

 

Transfer

Transfer and repatriation arrangements for adults with suspected or confirmed congenital heart abnormality 

Referral for ventricular assist device therapy or cardiac transplantation 

 

Transition

Bristol congenital heart centre transition process