On this page you will find electronic copies of leaflets you may be given throughout different stages in your or your loved one's congenital heart journey, as well as links to external websites that you may find useful. 

Information is grouped into categories for expectant parents, new babies (neonates), children, teenagers/young people and their carers, and adults. Resources are listed A-Z. Within the lists, there are some links to external websites where groups of leaflets are held and regularly updated.

Unless otherwise stated, the leaflet has been written by the Level 1 Centre, University Hospitals Bristol NHS Foundation Trust. 

If you would like us to add a further leaflet or resource to this section, please email Sheena.Vernon@uhbristol.nhs.uk 

Leaflets and Information for Expectant Parents

Bristol Royal Hospital for Children Patient Information Leaflets and Resources (External Link)

Fetal Medicine Unit at University Hospitals Bristol

Information for Parents Expecting a Baby with a Heart Condition 

Information for Parents Expecting a Baby with a Heart Condition (University Hospital of Wales, Cardiff) 

Leaflets relating to pregnancy and birth at St Michael's Hospital, Bristol (External Link)

What is a Fetal Heart Scan 

What is a Fetal Heart Scan (University Hospital of Wales, Cardiff) 

Leaflets and Information for New Babies (Neonates) 

Psychological Support for Families in the Neonatal Intensive Care Unit 

South West Neonatal Network (External Link) 

The Use of Dummies in the Neonatal Unit 

Welcome to the Neonatal Intensive Care Unit 

Leaflets and Information for Children (Paediatric patients) 

Advice for Pacemaker Patients at the Bristol Royal Hospital for Children

Asking for a Second Opinion in Paediatric Cardiology

Breastfeeding and Expressing

Bristol Royal Hospital for Children Patient Information Leaflets and Resources (External Link)

Defibrillator Advice

Discharge Advice following Cardiac Surgery

Endocarditis

Giving Paracetamol

Going into Hospital 

Healthy Teeth Make a Safer Heart

Home Monitoring Programme

Hypoplastic Left Heart Syndrome 

Information about Cardiac Catheterisation

Information about Electrophysiology Studies: EPS and Radio-Frequency Ablation

Liaise at the Bristol Royal Hospital for Children: How We Can Help

Medicines for Children

My Hospital Passport - A Guide for Patients and Carers 

Paediatric Intensive Care (External Link) 

Paediatric Palliative Care 

Play Services at the Bristol Royal Hospital for Children

Preparing for Heart Surgery

Pratical Ways to Help your Child Prepare for a Test or Investigation

Psychology Services for Paediatric Cardiology

The Cardiac Nurse Specialist at the Bristol Royal Hospital for Children

The Safeguarding Children Process - Information for Families

Transferring Patients to another Cardiac Centre

Treatment Planning and Consent for Children and Young People

Wales and West Acute Transport for Children (WATCh)

Wales and West Acute Transport for Children (WATCh) - Welsh Version

Wales and West Acute Transport for Children (WATCh) (External Link) 

Welcome to Ward 32 at the Bristol Royal Hospital for Children

When Your Child has Died 

When Your Child Gets Better: Discharge from the PICU at the Bristol Royal Hospital for Children

Leaflets and Information for Teenagers/Young People and their Carers

Parent & Carer Guide to the Adult CHD Service at the Bristol Heart Institute

Patient Information and Resources for Moving to Adult Services

Young Person’s Guide to Transition and the Adult Congenital Heart Disease (ACHD) Service (University Hospital of Wales, Cardiff)

University Hospitals Bristol Transition Website (External Link)

Leaflets and Information for Adults 

A Guide to the Adult Congenital Heart Disease Service at the Bristol Heart Institute 

Amiodarone

Aortic Valve Replacement (University Hospital of Wales, Cardiff)

Aspirin

Bristol Heart Institue Patient Information Leaflets (External Link) 

Cardiac Catheter (University Hospital of Wales, Cardiff)

Cardiac Intensive Care Unit at the Bristol Heart Institute - Visitor Information

Cardiac Rehabilitation

Catheter Delivered Pulmonary Valve

Clinical Psychology Services for ACHD Patients

Clopidogrel

Closing your Atrial Septal Defect without Surgery

External Cardioversion (University Hospital of Wales, Cardiff)

Furosemide

Implantable Cardiac Device Wound Care Instructions

Inserting an Internal Cardioverter Defibrillator (University Hospital of Wales, Cardiff)

My Heart Surgery Plan

Pacemaker (University Hospital of Wales, Cardiff) 

Patient Guide to Elective Day Case Cardioversion

Pulmonary Hypertension

Ramipril

The South Wales Adult Congenital Heart Disease (ACHD) Service (University Hospital of Wales, Cardiff) 

Tissue or Mechanical Valve

Trans-Oesophaheal Echocardiogram (TOE) (University Hospital of Wales, Cardiff) 

Treating your Coarctation by Stent Implantation

Welcome to University Hospitals Bristol

Your Adult Congenital Preoperative Assessment Appointment