Leaflets and Information for Adults 

 

Welcome to the Service

A Guide to the Adult Congenital Heart Disease Service at the Bristol Heart Institute 

Bristol Heart Institue Patient Information Leaflets (External Link) 

Cardiac Intensive Care Unit at the Bristol Heart Institute - Visitor Information

The South Wales Adult Congenital Heart Disease (ACHD) Service (University Hospital of Wales, Cardiff) 

Your Adult Congenital Preoperative Assessment Appointment

 

On the Ward

Tips and Tricks for Managing on the Ward for Adult Congenital Heart Disease Patients

 

Cardiac Surgery

Your cardiac surgery journey: Film 1 - Preoperation. Film 2: Day of Surgery.  Film 3: Discharge

Aortic Valve Replacement (University Hospital of Wales, Cardiff)

Aortic Disease and Surgical Options 

Your Guide to Heart Surgery

 

Procedures

Closing your Atrial Septal Defect without Surgery

Closing your patent foramen ovale (PFO) without surgery

Cardiac Catheter (University Hospital of Wales, Cardiff)

Catheter Delivered Pulmonary Valve

Diagnostic Cardiac Catheterisation 

External Cardioversion (University Hospital of Wales, Cardiff)

Inserting an Internal Cardioverter Defibrillator (University Hospital of Wales, Cardiff)

Implantable Cardiac Device Wound Care Instructions

Pacemaker (University Hospital of Wales, Cardiff) 

Patient Guide to Elective Day Case Cardioversion

Tissue or Mechanical Valve

Trans-Oesophaheal Echocardiogram (TOE) (University Hospital of Wales, Cardiff) 

 

Support services

Clinical Psychology Services for ACHD Patients

ACHD Psychology Services - Bristol Heart Institute

Cardiac Rehabilitation

 

 

Lifestyle  (Somerville Heart Foundation Resources)

A Guide to Adult Cardiac Care 

Can I drink alcohol if I have a congenital heart condition?

Eating for your hearts sake

Exercising with a heart condition

Effects of smoking and drugs on your heart condition

Emotional support and wellbeing

Sex and relationships

Having children if you have a heart condition 

Pregnancy and your heart: why it's important to plan ahead

Transition care

 

Dental Advice

Dental information for patients undergoing congenital cardiac interventional procedures (June 2021)

 

Other Resources and Support 

Visit the charities and support groups page

 

For Adults 

The Somerville Heart Foundation

British Heart Foundation

American Heart Association

Canadian Adult Congenital Heart Network

Youth At Heart: Support for Young People with CHD  

Cardiomyopathy association

Pulmonary Hypertension Association