In this section, you will find clinical information (guidelines, protocols and toolkits) relevant to Paediatric care. 

The UHBW DMS is being upgraded to a new system (MyStaff) and we are working to re-gain access. Please contact the Network team if you having issues accessing any documents on this page.  

If you have any suggestions for further documents to be added, please email: Sheena.Vernon@uhbw.nhs.uk 

 

QR code posters

 

QR code poster for medicines for heart conditions (medicinesforchildren.org.uk) 

QR code poster for CHD teenagers - understanding your heart: a series of booklets from the British Heart Foundation

QR code poster for CHD parents - understanding your child's heart: a series of booklets from the British Heart Foundation 

 

QR code posters for wellbeing resources for Children and Young People:

QR code posters for wellbeing resources for Parents/Carers: 

 

Bristol Royal Hospital for Children QR code directory to patient information leaflets for patients/families that relate to the surgical and catheter pathways 

 

Cardiology

Coarctation of the Aorta - BRHC guideline

Fontan circulation in children - evaluation and management (BRHC)

Referral to advanced heart failure and cardiac transplant services

Referral to national pulmonary hypertension service

Specific discharge guidance at transfer for minor lesions (congenital heart disease) - CHD Network, published October 2023

 

Clinical

Hypercyanotic Spell Emergency Management ('Spelling')

PDA: Patent Ductus Arteriosus - Guidance for Referral for Cardiological Assessment and Possible Ligation for Preterm Infants

 

Dental (also see Dentistry page)

Dental Care Pathways for Children with Congenital Heart Disease 

 

Electro-physiology

Pathway for paediatric electrophysiology procedures 

 

Exercise

Physical Activity: A Guide for Young People with a Congenital Heart Condition and their Families

 

Fetal (also see Fetal page)

Fetal cardiology service - arrangements for the early (pre natal) diagnosis of CHD

Fetal cardiology handbook 

 

Imaging

Clinician's guide to image sharing

Transfer of echocardiography data to other hospitals

 

Intervention 

Pathway for interventional paediatric cardiac catheterisation 

PDA guidance for ferral for cardiological assessment and possible ligation for preterm infants 

 

Medication

Warfarin Management for Paediatric Cardiac Patients

Medicines for Heart Conditions QR code poster (Medicines for Children)

 

Nursing (also see CHD/ACHD Nursing page)

Clinic Patient Resources

 

Patient - Self-Referral

Management of patients who self refer out of hours

 

Referrals - Second Opinions

Access to second opinion and referals to other centres/services

 

Surgical

Assessment of patients with CHD requiring anaesthesia 

Collaborative arrangements to facilitate joint operating, and mentorship in operating on children

Elective referral and consent pathway for paediatric cardiac surgery

 

Transition

See more on the transition and young people page. 

 

Transport - Patient Transfers

Time Critical Transfers - Wales & West Acute Transport for Children (WATCh) (External Link) 

Specific discharge guidance at transfer for minor lesions (congenital heart disease) - CHD Network, published October 2023